Welcome to our Resource Page
Our team at NextStep Orlando has worked on a simplified list of resources that may be helpful to those individuals living with paralysis. We hope this helps to make some of your research more accessible and not as daunting. Please feel free to reach out to our team if you have any questions!
1. Paralysis Resources
- NRN Paralysis Resource Guide PDF
- Nutrition Guidelines Book PDF
- Ask Nurse Linda https://www.christopherreeve.org/events/ask-nurse-linda
- Spinalcord.com https://www.spinalcord.com/
-CareGiver’s Rescue website https://www.ifrcsociety.org/resources/csil-employer-toolkit
- Treatments & Education https://pacificmedicalacls.com/spinal-cord-injuries
2. Recommended Equipment
- Standing frame: There are many well-known benefits to why individuals living with paralysis should partake in an at home standing program.
Regular standing has been shown to decrease urinary calculi, decrease bone demineralization, decrease spasticity, increase pressure relief, and increase morale and quality of life, to name only a few of the benefit. https://easystand.com/
- Myocycle: The MyoCycle Home is FDA cleared to prevent muscle atrophy, reduce spasms, increase blood flow, and increase range of motion. The MyoCycle Home’s advanced automatic calibration system delivers the level of resistance or assistance that is right for you so you get the best workout possible https://myolyn.com/for-home/overview/
3. Grants
- Challenged Athletes Fund: “High costs of adaptive sports equipment and lack of resources should not keep individuals with physical challenges from being active.”
https://www.challengedathletes.org/programs/grants/
- Rise Again: “Rise Again supports individuals with spinal cord injury or illness to believe and reach beyond expectations. Rise Again will also provide grants to professionals and organizations who focus on improving the quality of life of those affected by spinal cord injury or illness.”
http://www.riseagainsci.org/grant-applications/
- Project 34: “Project 34 assists with the purchasing of medical equipment and assistive devices that may not be otherwise accessible to a patient, as well as provides grants to individuals to afford physical therapy for optimal function. We want to ease the stress that accompanies the financial burden of these necessary materials, so that the patient and their families can focus on living a fulfilling life.”
https://projectthirtyfour.com/mission/
- MW Fund: “The mission of the MW Fund is to provide financial assistance for specialized spinal cord injury (SCI) rehabilitation not covered by insurance and to further support research initiatives developed for SCI recovery.”
https://www.mwfund.org/grant-application-2
- Be Perfect Foundation: “Our mission is to provide direct financial and emotional aid for individuals living with paralysis by providing resources, paying of medical expenses, restoring hope and encouraging personal independence through a non-traditional method of exercise-based therapy.”
https://beperfectfoundation.org/about
- We Win: “We Win’s mission is to raise money to help those recovering from neurological injuries afford rehabilitation services.”
- Amy Van Dyken Foundation: “Resources and wheelchairs for Kids.”
- Kelly Brush Foundation: “To inspire and empower people with spinal cord injuries to lead active and engaged lives.”
https://kellybrushfoundation.org
- More Grants here: https://www.spinalcord.com/spinal-cord-injury-grants
4. Medical Supplies
- NuMotion -Erik Kolacinski - erik.kolacinski@numotion.com
- SportAid https://www.sportaid.com/
-UroStat Healthcare -Brett Burns https://urostathealthcare.com/
- Monaco Medical Supplies dbergen@donacomedical.com
5. Home Modifications
- Center for Independent Living: Their AccesSolutions program provides a variety of home modifications and specialized equipment to people with disabilities who cannot afford modifications. https://www.cil.org/solutions/accessolutions
-All In Construction: “We are the most experienced renovation loan contractor in the Central Florida area. We have over 30 years of experience and a thriving network with top local lenders, inspectors, consultants, and real estate agents. We are also focused on our veteran and disabled communities to help renovate their homes in a way that works for their needs.” https://allinconstruction.com/